Empowering Patient Voices: Policy Change for Inclusive Health Care Research


Public Forum


Jun 21, 2023
5:30 p.m. – 7:00 p.m. EDT



Our Sponsors

Are you a health researcher, patient partner, funding agency, university student, or simply a member of the general public interested in patient engagement in health research and policy?

This will be the opportunity for you to ask questions about patient engagement in health research and learn why it is important to bring researchers and patients together to develop policies and strategies that align with both stakeholders’ needs.

What are the benefits and challenges of patient engagement in health research? What tools or training can be provided to researchers and patient partners for meaningful research outcomes? What kind of policies can the government implement to better patient-centered research and make it more inclusive?

This bilingual panel will be a 1-hour moderated discussion, followed by a 30-min Q&A session. Live interpretation will be provided in both English and French.
  • Annie-Danielle Grenier - Rare Disease Advocate and Patient Partner
  • Claudio Del Grande - Researcher at CRCHUM and PhD candidate at the School of Public Health of Université de Montréal
  • Marcel Saulnier - Health consultant and strategist, Member of the CIHR Strategy on Patient-Oriented Research (SPOR) National Steering Committee
  • Heather Shearer - Senior Research Associate, Cerebral Palsy Resource
  • Keith Misquitta - Public Forum Lead, SPE; Coordinator of Research Administration, Ontario Brain Institute
  • My An Nguyen - VP External Francophonie, SPE; Delegate to the Complaints Commissioner, CIUSSS West-Central Montreal